This page was last updated on: November 27, 2007
Links - Social Organizations   
Arthritis Organizations

Arthritis Research Council : Coperman House
St. Mary's Court, Chesterfield, Derbyshire  S41 7TD

Arthritis Care:
18 Stephenson Way, London NW1 2HD 
Tel: 020 7916 1500

Polychondritis Educational Society
608 S. Allen St.
Ridgecrest, CA. USA. 93555

Immune Disorder  Associations

Antiphospholipid Syndrome (Hughes Syndrome) The Hughes Syndrom Foundation: The Rayne Institue St. Thomas Hospital Londaon SE1 7EH

Bechet's  Syndrome     United Kingdom

Relapsing Polychondritis Support Group  Founded in 1987 our aim is to help those with relapsing polychondritis.

Raynauds and Scleroderma Association   United Kingdom

Rare Disease Advocacy Associations

Eurordis - Eurpean Organization for Rare Diseases
The European Organisation for Rare Diseases, EURORDIS, is a patient-driven alliance of patient organisations and individuals active in the field of rare diseases.
Eurordis’ mission is to build a strong pan-European community of patient organisations and people living with rare diseases, to be their voice at the European level, and - directly or indirectly - to fight against the impact of rare diseases on their lives.

NORD - National Organization for Rare Disorders  USA

UK Self help info
Over 780 UK self Help Groups and over 650 hyperlinks

Patient info

Patients Association

Autoimmune Disease Support Group
This is a support group for people who have been 'touched' by diseases of the Immune System...for example, Lupus, Crohn's, Behcets, MS, Arthritis, Sjogren's, etc... Whether you have an illness, care for someone who is sick or are a relative of someone who suffers, we all need to talk with people who know what we are going through.

Healing Well:
A community and information resource web site for patients, caregivers, and family coping with diseases, disorders and chronic illness.

ForCaregivers.com
ForCaregivers.com is an organization newly formed by a group of business owners who have been involved in caring for their loved ones with special needs for a good part of their lives. The idea is to focus on the people who provide care to loved ones and family members, as well as people who provide care management to patients and beneficiaries.

Networkchain Org
5000 rare disorders : A network Chain using mainly the Internet, between people or group of isolated people directly or indirectly affected by the same rare disease.

Deafness
www.findpal.com/deafness.htm

Hearing Exchange
http://www.hearingexchange.com/?source=Sprinks
For people with hearing loss an online community for the exchange of ideas and information on hearing loss and related issues. No matter what method of communication you have chosen, you'll find interesting and supportive information.

Social Help Org.
Disabled Living Foundation  United Kingdom

DisabledCity                          United Kingdom
Benefit Enquiry Line for Disabled People  United Kingdom Tel: 0800 882200

Health News & Information

Prescription Pricing Authority - Income related help with prescription prices

Disabled Living Foundation - Useful gadgets and adaptations

Independant advice on DLA and Attendance Allowance - includes levels of payment and the way decisions are made

Benefits Enquiry Line for Disabled People

Motability Scheme

Patients Association