2007 marks the 20th anniversary of the Relapsing Polychondritis Support Group.
We could not let the occasion go by without paying tribute to Clifford and Nellie Ashworth and remembering it was their hard work and determination that brought us to where we are today.
It is difficult to imagine the huge task Clifford gave himself when he decided to track down fellow RPC sufferers. He started his quest by writing to as many rheumatologists and dermatologists he could in the UK. All letters were typed on a portable typewriter. He did not have the benefit of computer or email. Clifford always said this would not have been possible without the help and support of Nellie.
As you know RPC affects us all in different ways but one thing I’m sure we have in common is the feeling of isolation when discovering just how rare this illness is. The strength of any support group has to be the opportunity it gives to its members to share their experiences and realize you are not alone.
Our membership has gradually increased over the years and through our affiliation with the Polychondritis Educational Society (PES) we have access to up to date reliable information about the illness, treatment and research, as well as the opportunity to be in contact with RPC sufferers abroad.
So much more is now known about RPC and there are many more treatments available than there were twenty years ago..We have come a long way since 1987 and I think Clifford and Nellie would be proud..
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