Support Groups
Support Groups - On Line
Relapsing Polychondritis
Support Group - a mutual support resource for those with RPC.Our goal is to support those with RP by sharing our accurate information and experiences of this rare disease. Sharing with others, our own personal experiences and discussing different medical treatments and medical problems associated with this disease. (global membership)
Our aim is to locate RP suffers, offer support and an exchange of information. Founded in 1987 by Clifford Ashworth (global membership with UK focus)
Polychondritis News (formerly The Support Report Newsletter), provides timely and accurate educational information to the Relapsing Polychondritis (RPC) community. Polychondritis News covers RPC and its associated diseases. The systemic manifestations of RPC are also broken down for the reader and covered as individual elements.
(Also available in postal format donation requested to cover postage and printing. ) (Global membership)
Beschreibung - Online-Selbsthilfegruppe
Deutschsprachige Selbshilfegruppe für Betroffene und Angehörige der seltenen Krankheit rezidivierende Polychondritis (RP). Alle von der Krankheit betroffene sowie Angehörige sind herzlich willkommen. Wir wollen uns gegenseitig helfen, trösten, austauschen, Infos sammeln, Umfragen erstellen und vieles mehr.
(German support group for those with the rare disease named Relapsing Polychondritis (RP). We also welcome their family members and friends. We want to help and support each other, exchange and gather information, create polls and much more.)
Ocular - Eye
Support Group is a patient education and mutual support resource founded in 1996 by faculty, staff and patients of the Ocular Immunology and Uvietis Foundation. C. Stephan Foster M.D. Founder. Our mission is to educate patients, family members and friends about ocular inflammation disease, and to facilitate the exchange of information, emotional support and mutual aid between members.
Regional groups through the Polychondritis Educational Society's Keep-In-Touch program are forming.
United Kingdom
Support Group
Celebrates 20th
Year
This page was last updated: March 10, 2008
