Member Services

This page was last updated on: May 10, 2008

Services

PES - Membership

By joining PES your voice is heard where it can have the most impact within the relapsing polychondritis (RPC) community. Your membership adds to the growing world wide network of fellow RPCers, researchers, medical professionals to help improve awareness, and support of  RPC.

Persons with RPC, families, friends and the medical community need to work together to understand and learn more about RPC and its many different manifestations.  Each person different, therefore we need everyone's input and support to assist us in improving awareness of RPC around the world, to promote research, improved treatments and, one day finding the cure for Relapsing  Polychondritis. 

The Polychondritis Educational Society, Ltd. (PES) is a non-profit volunteer organization comprised of people with RPC, family members, friends and medical professionals.

Keep-in-Touch (KIT)

As a member of PES, you are invited to join  the  Keep-In-Touch (KIT) support network. Joining  KIT connects you with other RPCers within your region, their families and friends.Helping to build communitte based support networks for those with RPC.

Your  KIT Area Representative will welcome you to the group and you will be given the names of other members who are available to provide support. You'll hear about upcoming events and meetings. PES encourages all members to get to know the members in your area.

Keep-In-Touch Members only:

Upon receiving your application your area representative will contact you via e-mail to obtain authorization to release specified information to other Keep-In-Touch members.

The Support Report Newsletter - On-line

The  Support   Report  Newsletter, provides  timely  and  accurate  educational information  to  the  Relapsing  Polychondritis  (RPC)  community.  The  Support Report Newsletter covers RP and its systemic manifestations of RPC  are broken down and covered as individual elements.

[PES Membership not required]

(Also available in postal format donation requested to cover postage and printing.)   

Volunteer

Volunteering offers you the chance to make a difference within the RPC community. With your help we can achieve our goals. With your help, we  can  provide quality services,  improve the lives of persons with  RPC,  find better treatments, promoted awareness and support finding a cure.

Whether you only have a hour or two a month or all the time in the world your help can make a difference!

Last Name:

First Name:

E-Mail Address:

Mailing Address:

City:

Province: (non USA)

Country:

Postal Code:

Telephone Number

The information given below is strictly confidential and will not be released to anyone.

Please Check the following boxes that apply to you.

The information provided below is strictly confidential and is used only to help the Polychondritis Educational Society, Ltd., better serve the Relapsing Polychondritis Community.

Year RP was diagnosed:

Age when diagnosed:

Thank you for filling out our short questionaire.

If you would like to make any additional comments. Please add them into the box below.

State:

Membership and  Questionnaire

We comply with the HONcode standard for health trust worthy information: verify here.

REQUIRED FIELDS

Would you like a response to your coments?

former e-mail address

Information Update

Forgot Password

Changing to Electronic Format

I Have RPC

Family Member with RPC

Friend with RPC

Join PES

Join KIT:      KIT members must join PES

Subscribe

Volunteer

YesNo:  Did your doctor have information on RPC for you?

YesNo: Do you feel your doctor understands RPC?

YesNo: Do you feel your doctors understand how you feel regarding your RPC?

YesNo: Would you like to be notified when a doctor is conducting research on RPC?

YesNo: PES, is conducting an analytical study on RPC, would you like to participate?

YesNo: Do you feel your RPC is undercontrol?

yes no