Rheumatology Associations
Arthritis Organizations
608 S. Allen St.
Ridgecrest, CA. USA. 93555
Rare Disease Advocacy Associations
Offers an Internet portal. Includes news, forums, rare disease and orphan drug info and registration forms
http://www.raredis.org
Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan drug database. Diseases are listed alphabetically for easy searching.
http://www.rarediseases.org/
Information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups.
http://rarediseases.info.nih.gov/
The European Organisation for Rare Diseases, EURORDIS, is a patient-driven alliance of patient organisations and individuals active in the field of rare diseases.
PhRMA represents leading global pharmaceutical research and biotechnology companies that are devoted to inventing medicines that allow patients around the world to live longer, healthier, and more productive lives. PhRMA companies are leading the way in the search for new cures.
Together with our member companies and local industry associations in over 60 countries, PhRMA works with governments and other stakeholders to advocate for public policies that encourage the discovery of life-saving and life enhancing new medicines and improve patient access to those medicines around the world. The PhRMA International Web site is designed to provide information on these issues and the programs that the industry is pursuing to address these global challenges.
Immune Disorder Associations
The Central Nervous System Vasculitis Foundation provides information, support, financial help, and funds for research.
Optical Information
5 Cambridge Center 8th Floor
Cambridge, Ma. 02142
