Relapsing Polychondritis (RPC) is a rare episodic and progressive multi-system inflammatory rheumatic disease involving all types of cartilage and connective tissue, which can be life-threatening, debilitating and can be difficult to diagnose. It was first described in 1923 and is characterized be recurrent, widespread and potentially severe and frightening episodes of inflammation of cartilaginous tissues. RPC affects cartilage in multiple systems, such as the ears, nose, larynx, trachea, bronchi and joints. In addition, it can affect proteoglycan rich tissues, such as the eyes, aorta, heart and skin. Central nervous system involvement has been noted in a minority of cases.
Greater awareness of Relapsing Polychondritis (RPC) has lead to improvements in diagnosis, treatment and potentially the development of a cure.
The Polychondritis Educational Society, Ltd. (PES), promotes public awareness of this rare disease, sponsors support groups, educational newsletters and promotes existing research into Relapsing Polychondritis while fostering a positive interaction within the RPC community. Members are individuals with the disease, their doctors and care givers, researchers, and family members and friends or anyone with a desire to learn more about Relapsing Polychondritis and its many different presentations.
Established in 1997, and formally incorporated in 2001, PES enjoys a worldwide membership and is recognized by the National Organization of Rare Disorders (NORD), as well as The American College of Rheumatology, and the International League of Associations for Rheumatology (ILAR) as a source for reliable information. PES's medical board of advisors includes some of the finest specialist in RPC medical care and research worldwide.
We invite you to peruse our Website for detailed information on this disease, support group pages and how you can make a difference in the RPC community.
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