The Polychondritis Educational Society, Ltd., is a non-profit volunteer organization developed to advance the understanding of this rare and orphaned disease.
- It is our mission to promote existing research.
- Help develop and promote new lines of research. Both analytically and clinically.
- Promote awareness of Relapsing Polychondritis to both the public and medical community.
- Create community outreach programs that help people with RPC better understand their condition and to work with them to promote a higher quality of life with Relapsing Polychondritis.
- The Clifford Ashworth Memorial Educational Fund (CAMEF) supports information dissemination between professionals who are, or may become, involved in the treatment of Relapsing Polychondritis.
- With a comprehensive understanding of RPC you can participate in the decisions that can make a difference in your life and medical care. Working together we can overcome some of the affects of Relapsing Polychondritis.
- Our aim is to help those with Relapsing Polychondritis by sharing information about this rare disease. Sharing our personal experiences with each other and helping each other learn positive ways to deal with this rare disease.
- The Support Report Newsletter is the official publication of the Polychondritis Educational Society, Ltd. The purpose of this publication is to provide timely and accurate educational information to the RPC Communities. The Support Report covers Relapsing Polychondritis and the systemic manifestations of Relapsing Polychondritis are also broken down and covered as individual elements.
The Polychondritis Educational Society, Ltd., is comprised of volunteers with Relapsing Polychondritis, family members and medical professionals. Working together, our goal is to support research and advance awareness of Relapsing Polychondritis and its many presenting manifestations.
The Polychondritis Educational Society, ltd., works with individuals, families, caregivers, doctors, researchers and medical providers to better understand the complexities of this rare and systemic disorder.
The Polychondritis Educational Society, Ltd., and its services are funded solely on the kindness and generosity of the Relapsing Polychondritis Community. Your support is greatly needed and appreciated to help us continue our mission.
